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Kiddos’ weights in grams
Kiddos’ weights in grams

On the minus side, Max still needs some oxygen. He’s got two little tubes in his nostrils and he doesn’t like it much. We are also waiting for the result of a genetic test that Merritt and I had to take to see if he’s not suffering from a rare disease that would prevent him from assimilating milk. He tested positive at a screening but no big concern yet: it’s a test that has a lot of false-positives. Only 1 or 2% of those who test positive have the dangerous form of the disease (galactosemia) and less than 10% have just an mildly annoying form of it (Duarte galactosemia). All the other ones are false-positives. As for Manu, the only thing she’s got is a tiny little bleeding in the brain. Yes, I know, it sounds bad when said like that but it’s common in preemies and in the vast majority of cases, it resolves by itself without consequences.

On the plus side, they are both doing fine (or great, say the doctors) by all the other tests they went through: genetic, x-rays, ultrasounds, blood exams, etc… They are being fed more and more - a big syringe of milk every 3 hours with a volume that’s increased of 1cc more every 6 hours - and they are gaining weight. It’s impressive to see the size of the syringe next to the kids. It’s looks as if an adult had to swallow a bottle the size of a big fire-extinguisher in less than 2 minutes. Burp!

Manu sleeping after gulping down 20cc of milk
Manu sleeping after gulping down 20cc of milk

 

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